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Old 04-28-2010, 10:16 AM   #1
BonnieR
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Re: Need Advice n!!!

I think she would be a wonderful resource and was very generous to make this offer. It would be so helpful to get answers from an actual qualified professional working in the field. I understand that you and she might have liability issues though.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 04-28-2010, 11:29 AM   #2
AlaskaAngel
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Re: Need Advice n!!!

I do think adding the professional nutritionist was quite helpful. Would you create a separate forum for her?

A.A.
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Old 04-28-2010, 12:18 PM   #3
Hopeful
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Re: Need Advice n!!!

Joe, you used to talk about adding a health professional that could put a lot of the technical abstracts we read into plain language. Would she be able to do that? If so, I think it would be a good addition. Also, I still see a lot of members posting for advice in handling treatment side effects. Perhaps she could be helpful there.

Hopeful
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Old 04-28-2010, 12:44 PM   #4
Joe
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Re: Need Advice n!!!

Alaska Angel - YES
Hopeful - We do have an oncologist who covers the major meetings. I posted her San Antonio report several weeks ago.

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Old 04-28-2010, 12:58 PM   #5
Hopeful
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Re: Need Advice n!!!

Joe,

I am thinking more along the lines of when one of us finds a technical article and posts it, there is someone here on staff to help interpret it.

Hopeful
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Old 04-28-2010, 02:43 PM   #6
Barbara2
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Re: Need Advice n!!!

I think it would be nice to have her assist us with questions, interpretations of medical articles, and more... anything that she could offer and be authorized to do so, would be wonderful. The hard part would be for her to know what she could and could not address.
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Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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