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Re: Long term survivors
Dear Skip,
I believe I posted earlier so I might be a "repeat" success story
I fully know what Florence is dealing with. When I found out that I had a liver met, I called the nurses at my Dr.s in a state of panic. I asked them if the cancer was running rampant through my entire body.
So....that is why we take chemo, kill the circulating cancer cells. If it would provide Florence with reassurance, she can take a circulating tumor cell test that while it isn't widely used supposedly can measure the number of circulating cancer cells.
As you can see from my detailed history, I had one met and have been managing the situation for almost 2 1/2 years. Please remind Florence that during that brief period, the options have increased dramatically. I have many more options in my hip pocket that I am confident will carry me through until the next big break through.
Would florence be willing to come to the site and share her deepest darkest angst? This really is a place where people understand.
Wishing all the best for you and Florence....Hugs....Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Hybrid Mode
