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Old 12-27-2009, 05:16 PM   #5
Lien
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Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Re: I'm so tired of this! (Venting again!)

Hi Chelee,

I'm so sorry you are in so much pain. It seems that either the doctor hasn't told you exactly what to expect, or he has been as surprised by your lack of progress as you are. Anyway, he should be discussing your options and helping you make a plan for further treatment.

If your ortho surgeon isn't helping here could your GP help out?

It's no using thinking that you might have been better off if you'd done chemo first. Perhaps neo-adjuvant chemo would have caused the healing to slow down even more. Or perhaps you would have fractured that femur, making it even harder to fix it. I think a substantial part of your hip/femur was affected by mets, so the healing process could well be affected by that. You made a choice based on the facts you had at the time and I think I would have come to the same decision you did.

Unfortunately it's not working out the way we wanted it to. That can't be helped. But we can look forward. You did get the leg fixed, you are getting chemo and Herceptin, you are fighting your mets.

Pain makes us desperate for relief. We would do anything to be rid of it. We want to move away from it. But second guessing yourself is not going to make the pain go away. Taking good care of yourself, trying to stay calm, and deciding to look forward are the only things you can do about it. If you are upset, pain becomes worse, so please try to do something to relax a little. If venting helps, please go ahead and vent. We are here for you.

Perhaps PT could help you cope better? Could you get some help with your errands and housework? These are questions you could try to concentrate on.

I hope you find some relief soon! Sending waves of healing energy and love,

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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