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Old 12-06-2009, 06:17 AM   #1
Pam P
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Location: MN
Posts: 731
Re: Does the anxious feeling ever leave

Mary Anne - what a beautiful response, lovely, thoughtful, and so true.

Dawn - I can't say anything more heartfelt than what MA wrote - only to add "Amen" to what she said.

For me that anxious feeling definitely has gotten easier. In the beginnning it was all consuming - like you describe for yourself. Do whatever you need to do as hard as it is to break through it. Talk to a counselor, friends,support group, whoever can help you voice the fears and to help put some of the anxiety into perspective. Talk to the dr about anti-depressents to help. Get out of bed, get out the door, stay engaged with what brings you happiness and life today. Then TRUST. You have a plan, a trt to manage this met, you are in good health, and have good care. As the months go by the anxiety may still be there, but consumes less of your day and energy. As the years go by you realize you are living with cancer, as a cancer survivor and life is good. One day at a time, one step at a time... What you are feeling is normal. Accept the feelings, let them out and let them go. Meditation helps me.... find what's helpful for you. Then allow yourself to relax and accept calm and joy and life happening right now. Now I'm rambling... just keep hugging the kids, enjoying each day, and living life.
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 12-06-2009, 06:48 AM   #2
Sheila
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Re: Does the anxious feeling ever leave

Dawn
Yes, the anxious feeling is not so overwhelming now, but as you can see in our posts, it still revisits us at scan time, or when something unusual happens.

After the initial shock of diagnosis, i have always tried to stay focused on the positive....not the why me, but why not me? I have learned to use this disease as a second chance, I know whats important....and I take advantage of each day....when i was told i was stage IV, back in 2003, I thought I was near the end....well, guess what, here in 2009, I am still fighting, still on treatment, but still alive. People tell me often that I look so healthy....my reply to them is, if it wasnt for the damn cancer, I would be healthy.

If you arent already in a local support group, seek one out....others here and in aa support group can help you get through the anxiousness.....try to start living again, and focus on your children, and all your blessings...there are days when i forget about cancer...and its wonderful!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-06-2009, 10:05 AM   #3
caya
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Re: Does the anxious feeling ever leave

Dawn,

I echo what eveyone has said. Although I am not stage IV, I still worry, it's always in the back of my mind.

If you feel you might need anti-anxiety meds, don't be shy about speaking to your onc. or GP about this. Many of us are taking some form of this medication, it's been a great help to me.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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