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Old 12-01-2009, 07:08 PM   #1
Becky
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Re: My Bone Update

Adriana

I have noticed no side effects. I do try to split the doses into breakfast and dinner. Most winter days I take up to 4500iu. It is like nothing and it should be if you figure that being out in the summer sun for 20 minutes with arms, legs and face exposed (with no sunscreen) produces 20,000iu and potentially, you could be doing this every day (although the tanner you get or the darker your skin is naturally, you make less. This is one reason why hispanics and African Americans can be Vitamin D deficient).

However, I forgot if you are taking chemotherapy. Vitamin D is NOT considered an antioxidant. In its useable form (it is converted in the liver and then the kidneys to is useable form) it is a hormone.

Another reason people become deficient, especially as we age, is that the liver and/or kidney conversions become less efficient so more is needed to keep the levels up.

If you are afraid to supplement more without your doctor's permission then perhaps you should ask your onc to run your Vitamin d level the next time you are getting standard bloodwork. If the level is good, then its good but if not, your doctor will certainly want you to do something about it and keep up the levels with more Vitamin D intake.

For Susan W - magnesium is abundant in the diet and is in many veggies, fruits, eggs etc. However, you do need adqueate levels in order to use calcium in the body. Chances are very strong that everybody gets enough unless all you eat is McDonalds.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-01-2009, 11:23 PM   #2
Jackie07
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Re: My Bone Update

Becky,

Glad to hear the good news. And thanks for sharing your knowlege - you have become such an expert on the Her-2 treatment. Our Board should get together and publish a book on the subject to benefit even more Her-2 sisters.
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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