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Old 11-10-2009, 11:23 AM   #1
vlcarr
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Join Date: Jun 2009
Posts: 343
Re: The treatment dilema, no T-DM1

Shelia,

Wishing you good results on the Tykerb-it sure did work wonders for me as you can see below. As a relative newby to the group, your posts always give me such hope and strength to fight this thing called cancer.

Keeping you in my thoughts and wishing you healing.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 11-10-2009, 05:30 PM   #2
Patb
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Join Date: Oct 2006
Location: Louisville KY Naples FL
Posts: 665
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Re: The treatment dilema, no T-DM1

God bless you, I am just exhausted reading all this.
I hope the tykerb works and you can go on the trial
when you feel comfortable with it. Its all a gut feeling
with me and whats going on so I understand.
patb
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patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 11-12-2009, 05:56 AM   #3
jhandley
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Join Date: Sep 2005
Location: Melbourne Victoria Australia
Posts: 330
Smile Re: The treatment dilema, no T-DM1

perhaps you can start 100 mg a day of Q10 to protect your heart?
Works for me!
Jackie (down under)
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