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Old 11-09-2009, 08:35 AM   #1
julierene
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Location: Illinois
Posts: 327
Re: Waiting on Trial, got Brain Mets...

I want nothing more... I despise everything about him, and I am even more devastated that he will raise my children after I am gone. I hate that more than anything I could ever say I hate more than hate. I have always prided myself on not hating, and now I am being constantly covered in it no matter how I try to get away. My mind is my worst enemy, and I can't get my filthy evil ex-husband out of my beautiful mind. I feel like he successfully destroyed me and all the good thoughts I had left of the world. I have always been such a positive person, in the face of such tragedy with my family cancer history. In one night, and two seconds of him spewing his sperm between another woman's legs, he might as well have took a knife and ripped out my heart. All for a two second spew of sperm. I have never heard of anything more stupid in my whole entire life to destroy a faith in someone. I try to tell myself it could have been worse, but for some reason, I can't seem to believe it. I think about how he ruined my marriage, tore up our family, and then goes about his life like he's happy now. Purposefully trying to make my life miserable any time he can. I think his abuse goes far above something he should be put in jail for. And when I think about him rotting in jail, it just makes me smile. Some day, a day I will probably never see, I just want him to learn what a miserable person he is, how he doesn't deserve a new wife, and doesn't deserve my precious children that he cheated on.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 11-09-2009, 10:26 AM   #2
MJo
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Location: Wilmington, Del.
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Re: Waiting on Trial, got Brain Mets...

RE: I have always prided myself on not hating

Those of us who would rather shoot first and forgive later welcome you. Does that make you a bad person? Only if you actually shoot him. That would make you a bad person. Please don't do that.

P.S. I just read your post to Joy. You do good work.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 11-09-2009, 10:33 AM   #3
julierene
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Posts: 327
Re: Waiting on Trial, got Brain Mets...

He already shot and emotionally killed me first with his adultery. I will never see revenge and that seems to really hurt me the most. He will likely live on way past me, taint my children to the Mormon religion, and ruin everything I have worked so hard for to instill goodness in them.
__________________
Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 11-09-2009, 03:58 PM   #4
Sheila
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Re: Waiting on Trial, got Brain Mets...

Julierene
Say your energy for fighting this disease and staying alive for your children...you will never change him, and you are wasting time and energy even thinking about him....the best payback you can give him is to stay alive to raise your children....so focus on positive things for yourself, his ways will take care of him...if he cheated on you, he will cheat on her.....be the better person and live for your children! They will know the truth one day!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 11-10-2009, 11:37 AM   #5
MJo
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Location: Wilmington, Del.
Posts: 1,126
Re: Waiting on Trial, got Brain Mets...

I agree with Sheila. I wish you didn't have the mets, but given that you do, your job is to destroy the cancer and stay alive for yourself and your children. Plus, it sounds like you are going to be a pioneer for the rest of us in this clinical trial you are fighting to join. I think you also give sensible and reassuring advice to others. I honor you.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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