3 years + on Herceptin, Why

I am very surprised by your MD Anderson onc's comments. I do not believe that there are any studies showing brain mets are CAUSED by Herceptin. They are associated with Herceptin use because Her2 positive breast cancer tends to metastasize to the brain and Herceptin does not cross the brain blood barrier. I believe that it is standard of care to continue on Herceptin until progression, and, in many instances, beyond Herceptin. Some women who have been on Herceptin for many years are now taking a break from it, but I don't think the effects of such breaks have been studied.

I wonder whether there is some gap in communication between you and your onc. Does he think that you are stage IV?

I have been on Herceptin for over 2 and a half years, and I am currently NED (knock wood).

Best,


Jill