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Old 09-23-2009, 04:48 PM   #1
DianneS
Senior Member
 
Join Date: Aug 2008
Posts: 327
Re: Cancer is back...I just knew it.

Chelee,

I know this is overwhelming right now. One step at a time. We are all here for you, sweetie. I'm glad you let your onc know you're ticked off! Maybe keep her on her toes from now on. You WILL get through this. I had all my chemo and herceptins without a port....perhaps they can find a vein without putting in a port? Can you use either arm?

Just a suggestion, but I make up lists for my docs so I don't forget anything. With all the tests you will be having it relieves your mind from having to remember every detail.

Sending the best vibes to you!
Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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Old 09-23-2009, 06:49 PM   #2
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: Cancer is back...I just knew it.

Sweet Chelee,
I have no words to say about your dr. I am not going there with her. First of all and most important you allow yourself to feel what you feel. Of course it is over the top - and I doubt it gets easier anytime.

I think it is very wise to start the herceptin. Next before you jump into any further treatment I would get a 2nd opinion....while Dr. Slamon may not be taking new patients he certainly would consult. Give his office a call up at UCLA...That alone will give you a strong footing once again as you gear up to fight back.

It goes without saying how sorry I am that this has happened to you...and I am angry!
Love you,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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