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Re: TDM1 Trial Participants: I Need Advise
Carolyn,
I am so excited for you and wish both you and Barbara all the best.
Thank you for posting these questions as there are more "lurking" than you may realize.
I am headed in for my post cryosurgery / Abraxane Pet/CT. I have been feeling a burning sensation in my stomach and am 95% certain that the treatment isn't working.
So....I am very interested in this trial and would also have to travel. (I live in a suburb of Denver, CO)
Carolyn, you mentioned that you would only need to travel for the first 9 infusions. Is that recollection true? Can you receive your other treatments locally because there are TDM-1 trials in your area?
I am just trying to data gather to determine if a non-local trial would even be remotely possible. (I too factor in the impact to my highschool daughter when making treatment decisions)
Any insights would be appreciated....Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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