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Old 08-11-2009, 09:13 AM   #1
rl2
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Re: Now What?

If you look at the statistics on recurrence following herceptin, I believe it peaks at around 2 years and then falls off dramatically, so your doctor is correct (of course!). I know it is hard to accept that you will not be tested constantly, but the tests will not prevent recurrence (if it happens - and you will most likely not have one) and the detection at 6 months would be sufficient. Of course if you notice anything you should contact your doctor. It is hard to go from constant treatment and monitoring to nothing - a lot of patients feel anxious about it (being on their own) - but it gets easier with time.
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Old 08-11-2009, 09:27 AM   #2
rl2
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Re: Now What?

oh and I believe recurrence is measured in the herceptin tests from end of treatment, unless someone knows otherwise!
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Old 08-11-2009, 01:29 PM   #3
Terri B
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Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
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Talking Re: Now What?

Brenda, I'm right there with you, girl!

I just finished my last Herceptin yesterday! Woo Hoo!

Now, I'll get back to life as best I know how. Try not to worry about stuff that you have no control over. You did your very best and that's all you could have done!

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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 08-11-2009, 03:52 PM   #4
Brenda_D
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Re: Now What?

I was told the 2 years goes from the end of active treatment, and for us that's the end of Herceptin.
Other opinions may vary.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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