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Old 08-06-2009, 05:34 PM   #1
robind
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Re: Aromatase Inhibitors/Weakly ER +

Sorry I didn't see your post sooner. I take Femara and I am weakly er+and as pr+. Although it is true that there is a small benefit...there is a benefit. I was taking Boniva before I started and my oncologist recommended that I stop that and take Zometa. I was quite reluctant at first but did a lot of investigating. I have had 1 infusion of Zometa. The course is 2x a year for 3 years. It can be given by IV but I get in my port because I get Herceptin through October. In discussing the overall benefit to me in taking an AI, my oncologist truly felt that a small benefit is just additional insurance. I agree and felt that it was in my best interest to take it - if I should have a recurrance at some point, will I wonder had I not taken that small benefit to me would this have happened???
If you already have osteopenia and or osteoporosis, you might ask your doctors about Zometa or some of the others out there for bone repair and strength. I know of a woman who is stage 4 with bone metastis. She has been on Zometa for at least a year. Recently, she had a scan and received great news...she has absolutely no holes in her bones. That to me was amazing news.
Let me know what you decide to do. Robin D.
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Old 08-16-2009, 03:35 PM   #2
Karen Wheel
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Location: Sardegna, Italy
Posts: 362
Re: Aromatase Inhibitors/Weakly ER +

I have a strong E- % --- however after I, too, can not find anything strongly motivating enough to make me go on hormone therapy .... and the last few names of drugs my oncologist gave me to research (here in Italy - so I have to do my research in english as I don't read really well in Italian!) but ... both the drug options were for post menapausal women. At that point, I just thought, it can't be this hard! And, I am going to just pass - no thanks. Not going to put my body into more shock --- and the risks are really high for side effects and the benefits (for us Her2 +++) well, the jury seems to be out on that one.
So, not sure if I helped, but I'm opting to not do it.
:-)
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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