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Old 07-03-2009, 12:26 PM   #1
Jackie07
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One thing just came to my mind - in 'sexual harassment' cases, the proof lies in the victim's perception. Because everyone has different 'threshhold' to certain emotions, the majority will need to 'yield' to the minority, however unecessary it might seem.

Because of my brain surgeries and chemotherapies, I have some problem in the 'short-term' memory area. It is very hard for me to learn new tasks, especially the 'easy' ones that only take others 'seconds' to learn. [Because I won't have time to use my 'compensatory' skills and mechanism to lock it into my 'long-term memory.]

A couple of months after I joined the board in 2007 (?) during my recurrence, I realized that I had joined the board in 2003 (or 2004) during my first breast cancer treatment. I was busy attending teacher training classes in 2004 after my chemo and probably did not feel the need to visit the board. Part of the reason could also be my cognitive problems - I could have simply forgotten about it. (Now you know why none of the schools would renew my teaching contracts - it had become a 'safety' issue.)

Because of my own experience, I tend to think the members who had 'vanished' from the board are either no longer with us physically or just not feel the need to visit the board at the time.

It amazes me how much effort Joe and Christine have put into this Board. It amazes me even more how many brave souls are here daily to attend to each others' need. I have always believed in 'Love never fails'. And I believe and hope 'Love, keep us together." [Any Captain and Tennile fans out there? ]
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-03-2009 at 02:25 PM..
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Old 07-03-2009, 03:06 PM   #2
Chelee
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In all due respect to Steph & others I totally agree with Pink on this one. It's alright for people to express their feelings, but to be directly mean spirited towards someone is just uncalled for.

It’s just awful that we now have members that have to think twice about posting their good results, or an encouraging story of hope. We have several if not more people that are now afraid to post & that should concern all of us. I know what it feels like to not be comfortable posting here after someone criticized me harshly for asking a question once. Since that time I've never felt comfortable asking a question again. I absolutely hate the idea that anyone else on this board should feel the same way.

It’s so simple...if you don't like something just don't click on that link. This board is organized and set-up nicely. It makes it real easy to pick and choose what you are interested in reading. If someone has a personal issue with another...Joe also has that covered too...its called "Private message".

Closing the thread is not always the answer...everyone should have a right to be heard if they are being respectful to the others.

Let it be known that I like Andi's posts & I don't want others making decisions for me on what is allowed on this board & what's not. (With the exception of Joe & Christine)

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.

Last edited by Chelee; 07-03-2009 at 07:49 PM.. Reason: Spelling...
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Old 07-03-2009, 03:27 PM   #3
Cannon
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I would like to say "oy vey."

What I like about online support groups as opposed to in person ones is that it is easy to take what you like, and leave the rest. There is no need to engage with anyone in a negative way.

What I like about this support group is
1) that it is very focused, on a particular type of breast cancer, that I have
2) that there are tales of hope and inspiration every day
3) that good news is celebrated
4) that people with bad news are supported
5) that there are SUPER knowledgeable people here willing to share their knowledge, expertise, and experience
6) that Joe and Christine bust their butts to make it possible

For some reason, there are group dynamics in any group like this, and some people project their own stuff onto other people, and some people take on stuff that isn't theirs. Try to let it go...

Rebecca
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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Old 07-03-2009, 05:52 PM   #4
MTome
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Dear members,

I was encouraged by Andi to join this site. I am a new member and was very inspired when I read Andi's post a couple of weeks ago. Reading all this just blows my mind, all this bickering is so childish and such a turn off to a new
member like myself honestly.I am dealing with stage 4 and to read all of Andi messages were very encouraging. Oh well. I wish you all well and god bless you.
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Old 07-03-2009, 06:51 PM   #5
Ceesun
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I read Andi's original post and was inspired by it. Thinking of Andi, Christine, Stephanie, and others who are long term survivors gives me hope and encouragement while realizing some reach long term survivorship and others do not. I did not read and will not read all that has come from that post...the misunderstandings or whatever has come from it--seems to have undone the good that was meant. None of us who come to this board need more aggravation in our lives---we are all dealing with enough. I respect Pink Girl very much she and this website have been a Godsend to me. Let's not tear each other down, cancer does enough of that. I think Andi is trying to give us hope and encouragement. I welcome that. In Harmony, Ceesun
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Old 07-03-2009, 09:46 PM   #6
vickie h
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Steph,
Thank you for your insight. As usual, your words are right on target. I missed the whole controversy (glad I did) but your added insight is refreshing.
Much love,
Vickie
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Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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