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Old 05-20-2009, 08:57 PM   #1
Joan M
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Posts: 1,851
Jennifer,

Please let Joy know that I'm praying for her.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 05-20-2009, 09:45 PM   #2
Gerri
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Jennifer,

Thanks for the update on Joy. I'm praying she has the strength to get through these rough times. She is such a fighter! Please keep us updated.
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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Old 05-20-2009, 11:13 PM   #3
karenann
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Location: Walnut Creek, CA
Posts: 438
Praying for Joy.

Karen
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Old 05-21-2009, 07:54 AM   #4
MJo
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Location: Wilmington, Del.
Posts: 1,126
All the best to you, Joy. Being in the hospital isn't always such a bad thing. They can do all the tests and come up with a treatment plan without you having to drive/walk from office to office. I am praying for a good outcome, along with everyone else here.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 05-21-2009, 08:11 AM   #5
Vi Schorpp
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Join Date: Sep 2005
Location: OH
Posts: 385
Jennifer

If love, prayers and support could make her well, you can see from the outpouring of affection on this site that she would be healed. She is a special person and I'll add my support and best wishes for her to the avalanche of good wishes she already has. I am blessed to have 6 sisters. When I wasn't feeling well it was a tremendous relief to know that my wise, caring sisters were there to do whatever needed to be done. It was a sense of relief, which I'm sure Joy feels for your being there.
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Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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