Incorrect Info

[BarbM]

Thank you for the input in this situation. I, too, thought maybe she was "dumbing down" the Herceptin vs Tykerb issue (I like that term). This was info that the patient was asking for on behalf of someone she knows. It wasn't even info for herself. Since all cancers are different and there are differences within the subgroups, she should have told her to have her friend contact a doctor. I am going to bring this up with my oncologist next Monday. Thank goodness I do all my own research, and everyone here has helped to make that possible. I truly believe that this website has the most well informed followers.
Many thanks,
Barb

[AlaskaAngel]

Having been a medical worker AND a bc patient, I lean toward wanting to improve "the system". What I've done in talking it over with the PCP is to ask for (and then ask again if necessary) the office to "demonstrate that they really are interested in being accurate" and in "doing better" in a concrete way by setting up a maintained patient self-education situation. When I finished treatment, in respect for my PCP's office and the patients, I bought a small pretty basket to contain their patient education materials, and then donated a copy of the Mayo Clinic Guide to Women's Cancers to go in it. It is portable for the nurses to use with the patients. When I see my PCP I request to see the basket so that I know they are keeping it current.

AlaskaAngel