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To anyone haveing desensitivation for Herceptin... I have had to stop my Herceptin due to two very bad reactions in the past two years with severe headache and "an outer world feeling like being outside of things looking in" dizziness and lethargy and muscle spasms. I also had very severe CHF about 4 years after taking. We stopped for 4 months I went on cardac meds and now muga is good. I would really like information on getting back on Herceptin. My Onc already has said he would not restart it unless I was in the hospital. How did you start at what dose and speed? and how fast did you get back to ?loading dose or normal dose? Thanks Marily
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 "Worry looks around, sorry looks back, Faith looks up.."
Marily
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