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Old 03-16-2009, 04:06 AM   #1
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Well done, think it's excellent! will get it to as many people and organisations as I can.

Can I just amend the following type errors that I have underlined below

Line 1 singled

Line 4 National Institute of Clinical Excellence

Line 8 advanced
options

We will see if women power works!

Ellie
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Old 03-16-2009, 05:13 AM   #2
fullofbeans
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Join Date: Jan 2007
Location: UK
Posts: 617
The changes have been made. Thanks Ellie I appreciate it. I don't know why I typed evidence instead of excellence I so knew that.. That said I typed it with anger so..

Great lets get it to circulate please do so in the US and everywhere aswell even if you do not feel concerned (you have to say from which country you are from on petition) I think that being shamed might help..

Also it is a very good point that the British health system should not be used as a model !!!!!!!!!!!!
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 03-16-2009, 02:31 PM   #3
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Hi everyone just a quick update. So far we have now got 42 signatures on our petition to get Tyverb (aka Tykerb outside UK) approved after it was rejected by NICE,the body responsible for approving new drugs

Please, please ,please friends sign the petition and send it to anyone else you think might support it.We need your help!

Many thanks Ellie

Last edited by Ellie F; 03-16-2009 at 02:33 PM.. Reason: added another word
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