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Old 02-07-2009, 02:27 AM   #13
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Angry

Thank you all for your warm support.
I got a shot of blood thinner the night before the operation. Could Faslodex be incompatible with blood thinners. I do not understand what it says on the Faslodex warning. Something like "if you take blood thinners, tell your doctor". What does that mean?

Yes, I know they didn't watch me right. I was in a recovery room plugged into the monitors. They had several ways of seeing I wasn't well. I have no intention of suing anybody but I want the truth. By law, I can ask a copy of all the internal documents. I will do that because they are afraid to talk. I consider that everybody can make a mistake. These doctors and nurses have a tough job and we love to find them to help us. What gets me upset (and now a little mad) is the tentative to cover up. It's a dangerous attitude for the patients. The best is to put everything that went wrong on the table and correct the process or the training.
I was not really interested in my new breast for days. Now I am happy it is done although it looks terrible; like if they sewed half a watermelon on my chest. I know it is going to improve in the coming days. I am supposed to have another 2 hour operation in 3 to 4 months to do the final shaping. I hope I will be courageous enough to go back!
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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