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Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

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Old 01-11-2009, 04:59 AM   #1
Mary Anne in TX
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Before TV, ipods, etc there were quiet moments by the fire. Time for reflection and prayer. Time to see life in full view. Years ago on backpacking trips in Wyoming in the Snowy Range, I had some of those priceless moments. I think I'll just sit by the fire for a while longer.....ma
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Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 01-11-2009, 12:31 PM   #2
ElaineM
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Wink The Campfire

Put your fears about things lurking in the woods aside. Bill is going to protect us and there is safety in numbers.
As long as we are together nice and warm with our snacks praying for each other and putting our fears into the fire we are going to be okay.
Please pray for the unnamed woman I met in the docs office who suddenly told me her lymphoma returned after only 4 months. I could sense the fear in her face and voice. I tried to encourge her to stay positive. Please pray for my friend who is ill again with an unknown illness. He is an elderly man who is very shy about sharing.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 01-11-2009, 01:38 PM   #3
vickie h
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Elaine, we have your friends by the fire with us...they are part of the circle.
Mary Anne, I too, remember the reflection by that warm fire when I was in Yosemite last. It is one of the most peaceful times I have ever felt...surrounded by huge redwoods that had been on this earth for generations before me. And I thought to myself "How many others have been at this campfire, at this place of spirituality, at this amazing piece of God's work?"
I will come and sit with all of you tonight, in love and hope. As for fear, it has to find it's own path..far away. Love, Vickie
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Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 01-11-2009, 09:27 PM   #4
ElaineM
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Wink The Campfire

Thanks for keeping my friends safe by the campfire. Bill the campfire is such a great idea. Let's keep it going forever.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 01-12-2009, 07:07 AM   #5
WomanofSteel
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I too would like to throw a log on the fire and join in. Maybe we could sing some Dylan songs or Joan Baez.
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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