| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
 |
|
09-05-2009, 10:59 AM
|
#1
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
Re: The Campfire
having a fire here tonight to celebrate my 5 years on monday! anybody in the neighborhod is welcome to stop by.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
|
09-25-2009, 04:59 AM
|
#2
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Re: The Campfire
Elaine,
I am with all of you keeping the fire burning. I send prayers out today for the Mighty Oak, Joy, Chelee, and any other of our sisters and brothers that need God to comfort them.
May all of us receive blessings.
Amelia
|
|
|
|
|
10-10-2009, 10:01 PM
|
#3
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: The Campfire
Congratulations, Juanita - my, how time can fly when we are are busy with our families!
Getting chilly now at night and seems like a good time to add a little fuel to our little campfire. Need to keep some of our suffering souls warm now.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
10-11-2009, 12:00 PM
|
#4
|
|
Senior Member
Join Date: Jun 2009
Posts: 343
|
Re: The Campfire
This is so perfect. We are having our first "cold spell" as we call it here in TN and nothing comforts like the warmth of a fire. I'll be keeping the logs handy. I'll bring my vision board my daughter made for me-we can surely read it by the light of the fire with all the positive messages and images to remind us not to be afraid.
I love the idea of writing our fears down and throwing them in the fire--I have several I would like burn.
"And it burns, burns, burns, the ring of fire"........
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
|
|
|
|
|
11-26-2009, 10:36 AM
|
#5
|
|
Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
|
Re: The Campfire
Needed a little warm up here before I get baking. Love you all!
Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
|
|
|
|
|
11-26-2009, 09:40 PM
|
#6
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: The Campfire
Hi,
I just dropped by to warm up on this very windy evening in Hawaii and to sit awhile and think about my blessings.
I brought some homemade cranberry sauce and sweet potato pudding to share. I always make more than I can eat.
|
|
|
|
|
11-30-2009, 11:56 AM
|
#7
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: The Campfire
Mele Kalikimaka, Hauoli Makahiki Hou !!
(Merry Christmas and Happy New Year in Hawaiian)
Hey everybody,
I have been reading your posts in this thread and the thread I started about virtual Thanksgiving. Sharing our holiday experiences, feelings and memories has been wonderful.
Here is my suggestion
Let's have a holiday open house around the campfire !!
Feel free to drop by whenever you want to rest, pray, share memories, warm up, share food, decorate, celebrate whichever December and January holidays you celebrate. You will never feel alone at the campfire. It is our very own virtual retreat center !! I think Bill must be finished with the potty by now, so we shouldn't have to worry about that !!
|
|
|
|
|
12-01-2009, 10:07 PM
|
#8
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Re: The Campfire
I'm feeling uncertain tonight. Came by to throw another log on the fire and listen to some good conversations.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
12-01-2009, 11:50 PM
|
#9
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
|
Re: The Campfire
Tonya,
'Uneasy' or 'uncertain'?
Thanks for adding the log, it's burning quite well when I got here. So now I am cozy and warm. Felt like to turn in. How about 'you' start some 'conversation' - I'll catch up tomorrow...
Sleep tight...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
12-13-2009, 02:23 PM
|
#10
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: The Campfire
Hello, Ladies! I hope you're all warm and well. I thought I'd stop by, toss a few logs on the fire and take the chill off. I've brought a pot of turkey chili with me to simmer in case anyone gets hungry. Elaine, I know what you're thinking, but I also brought a strainer for you to use so that you can strain out the turkey. (Just put it into my mug, please).
__________________
For Nicola
|
|
|
|
|
12-16-2009, 03:00 PM
|
#11
|
|
Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
|
Re: The Campfire
That baby looks like the queen of the world in that picture Bill. She knows she's loved!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
|
|
|
|
|
12-16-2009, 05:02 PM
|
#12
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: The Campfire
Thank you, Ladies! She is the happiest, most alert baby you've ever seen. She is such a sweetheart.
__________________
For Nicola
|
|
|
|
|
12-17-2009, 07:30 AM
|
#13
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Re: The Campfire
Bill and Ladies,
Thank you for keeping the fire going. Happy holidays to you all.
AmeliA
|
|
|
|
|
12-30-2009, 04:01 PM
|
#14
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Re: The Campfire
I think there is a book thread around here somewhere but I was too lazy to look for it. I want to recommend The Lovely Bones. Tough subject matter but a very interesting book. IMHO.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
02-17-2010, 05:57 PM
|
#15
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: The Campfire
Tossin' a log on the fire. There's been so much snow around here lately that we've let our fire dwindle a bit. I blame Lee, and that's easy for me to do because he's always the one to blame, as I left him in charge of wood-gathering and fire-tending, but oh, well.....Anyhow, I've scraped off a little snow from the wood-pile for Lee so he wouldn't get his hands cold and chucked some wood on the fire....
__________________
For Nicola
|
|
|
|
|
02-17-2010, 06:47 PM
|
#16
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
Re: The Campfire
Stopped by to warm my hands up a bit...cold down here in Bradenton too...just wanted to see the friendly faces of my Her2 buds,
Marcia
|
|
|
|
|
02-17-2010, 06:56 PM
|
#17
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
|
Re: The Campfire
Good to see you, Marcia. I just brought some mesquite logs from Central Texas that's good for B-B-Q. Thought Bill might have caught a rabbit or something while waiting for Lee... 
[By the way, got a phone call from the geneticist of the hospital. She said the BRCA1 variant I have (v1247i) has just been taken off the list. Now we'll need to check into the HNPCC factor that could be the cause of my 2nd Brother's colon cancer and other cancers in the family - lymphoma, brain cancer...]
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 02-17-2010 at 07:43 PM..
|
|
|
|
|
02-18-2010, 12:15 AM
|
#18
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Re: The Campfire
Ok Jackie, so you are BRCA negative for 1 and 2? If so, thats great!
Hi Marcia! Hi Bill!
FYI: Hawaii is having the WORST drought in the nation! Now isn't that the wierdest!! And this is the warmest winter that I can remember!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
02-18-2010, 02:01 AM
|
#19
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
|
Re: The Campfire
'Global warming'?
Could it be caused by too many 'Campfires' ...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
02-18-2010, 11:42 PM
|
#20
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Re: The Campfire
Yes this global warming is creating some extreme conditions around the world! Very noticable here in the U.S.!
Elaine...Big Isl...this week has been very chilly and windy here. I really like it!! Right now it is 8:45pm and 59 degrees out!! Must be the "wind chill factor"!! hahaha!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
| Thread Tools |
|
|
| Display Modes |
 Hybrid Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is On
|
|
|
All times are GMT -7. The time now is 08:02 AM.
|
