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I so empathize
Julie, I really understand your frustration and pain, emotional that is. Just when some of our hopes and dreams are coming true-cancer reaches in and sucks some of the joy out of it. It makes me angry for all of us. I have shed many tears in the dark over that. It makes you wonder if we should pursue anything at all in the dark times. I am so sorry about this phase of things for you.
But, I do think some of our resident sages, yourself included, have offered some good advice and experience as well as questions to pursue with your medical team. We have to believe that there is always something else. It is a hard hope to have when you see the word 'progression' over and over again. But there are things out there and the DM1 trial could be a great option for you among several.
Continue to hope and to fight. Be mad and frustrated too when you need to. I know how exhuasting it is.
I know you will find the route you need to take and I am hoping it is effective and fairly easy to take. Being in Texas is a good thing too as was mentioned. As Will Ferrel said in "Blades of Glory": "work the google on your internet machine," and find the trials that apply to you and ask, ask, ask all the questions you can.
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with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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