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Old 12-17-2008, 08:10 AM   #1
RobinP
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I thought I would just chime in on this tid bit. Vitamin is often used in nursing homes to take aches and pains away, oddly enough. Other uses besides bone density also include cancer prevention and down regulation of the her2 pathway, as many of you know.
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Old 12-17-2008, 07:24 PM   #2
eric
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2 questions:
1. what's the importance or impact of low levels of vitamin D?
2. any conflict with D megadosing and chemo?
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Old 03-19-2009, 12:20 PM   #3
StephN
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Wink Followup to vit. D megadosing

As of my blood test on Feb. 21, after completing the 8 weekly doses of 50,000iu of Vitamin D, my level went UP TO 50!

I was very happy about that. So, now I am taking the 2,000 per day that my oncologist recommended and we will monitor again in 6 weeks. I hope to keep my level in the range of 50, which is a number my doctors like. I was cautioned about taking any more than 4,000 IU per day, as there are problems with toxicity if levels reach in the 100-150 range.

CALCIUM - I also discussed the need to bump up my calcium intake. Even though my serum calcium from the lab work is normal, our blood will rob our bones of calcium if there is not enough intake. Thus weakening our bones. After seeing how much calcium I get in my regular supps, I will take another couple of 500mg doses. (We need to spread the doses out from morning to night for best effect.)

ERIC - This partly answers your questions, but I do not know about any conflict with chemo. Did you happen to address this with Caryn's doctors since you posted that question?
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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