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View Poll Results: Were you biopsied based on mammographic calcs w/o any palpable or verified mass?
Yes 10 40.00%
No 15 60.00%
I'm not sure 0 0%
Voters: 25. You may not vote on this poll

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Old 12-09-2008, 12:35 AM   #1
AlaskaAngel
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Question puzzling question

I think my problem here is that the poll function allows just very short uncomplicated questions to be asked, with only very simple responses. Some have indicated that they found their own lumps themselves by being able to feel them.

What I want to know is how many people were biopsied without anyone (including themselves) determining that there actually was any lump at all TO biopsy.

I want to know if it makes any sense to all you people who have been diagnosed with breast cancer, if neither the doctor nor the patient has felt any lump or symptom AND the medical provider refuses to provide an ultrasound or MRI to show that there really is any lump at all, and yet advises the patient to have a biopsy just because the patient has calcifications on mammogram. In the case of the person I am concerned about, the calcifications are even not typical for cancer but instead are coarse calcifications (although there are a fair number in the clump). It makes no sense to me at all, but I'm trying to find out from all of you whether this is becoming standard practice for some strange and undetermined reason.

Inflammatory breast cancer would be the exception in that it would be seen as a sign on the skin, and then biopsied to verify it rather than imaging it or finding a lump. But what I am asking is if there is no sign or symptom other than calcifications, is it still standard practice to verify that there is a lump before doing a biopsy, or is it normal for a breast cancer imaging center to biopsy all women who have no sign or symptom and no demonstrated lump just because they have calcifications on their mammogram? This woman has tried to request further imaging from her HMO to verify whether there actually is any lump at all, and they are refusing and basically telling her she should have just the biopsy. Does that make sense to you? It doesn't to me.

Thank all of you for your patience with this question. I think something is not right about this. Not only that, but when she asked about possibly choosing an excisional biopsy, the doctor at the breast cancer center said "that would be pretty extreme, given her mammogram". Either she does need a biopsy or she doesn't; what kind should be entirely up to her. It makes me all the more suspicious when they are not willing to verify that there actually is ANY lump and just want to go straight to stereotactic biopsy.

Please help with further replies and by answering the poll as best you can. She is supposed to be biopsied on this coming Thursday. I just want to know if I am wrong about this or not, and if so, why?

Thank you,

AlaskaAngel
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Old 12-09-2008, 01:32 PM   #2
StephN
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Hi AA -

Yes, it is not a simple question.

I do have a friend who is a nurse who had suspicious calcifications a few years back. She did not have a family history of BC, but pushed to have a lumpectomy and have the tissue removed.

They did find "atypical cells" which likely would have gone on to form cancer.

She was fairly flat chested and the place of the excision was on the side and not noticeable. She was most relieved not to have to keep going back and and be in the "watchful waiting" mode.

Seems to be a similar situation to the person you are asking for.

P.S. It took THREE biopsies for them to confirm my cancer. My actual tumor was quite small but there were "atypical cells" in the tissue surrounding the tumor since it was no longer in situ. This is why I think she needs to get more than what a needle biopsy can take.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 12-09-2008 at 01:35 PM..
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Old 12-09-2008, 04:53 PM   #3
Montana
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Yearly mamo found calcifications (dcis) which were then immediately ultrasounded. No lump was felt. Stereotactic biopsy followed later in the week. The IDC was found during lumpy.
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Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%

Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.

Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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