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11-20-2008, 07:03 PM
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#1
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Senior Member
Join Date: Oct 2007
Posts: 203
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Ditto - actually, I had my ooph at the same time as my mastectomies (one required, one prophylactic) - I was 43 at dx and took a very aggressive approach.
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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02-19-2009, 07:55 AM
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#2
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Member
Join Date: Oct 2008
Location: MN
Posts: 12
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Hi, I've completed chemo (TCH) and will finish radiation next week. (Herceptin will continue for the full year, of course.) Tamoxifen is next on my treatment plan. I am ER+/PR+/HER2+. I am also age 47 and pre-menopausal, but now in "chemopause". My oncologist has mentioned if there is ever an opportunity to have my ovaries removed, do it! My question is, does health insurance typically cover a surgical procedure to remove the ovaries to shut off the estrogen for a highly ER+ pre-menopausal woman, when there is nothing wrong with the ovaries per se?
Thanks!
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02-19-2009, 08:06 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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My insurance company paid for the ooph under the same circumstances as you. I was 46 at the time and got my menses back
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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02-19-2009, 10:32 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 49
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Hi,
My insurance company did pay for my ooph which was also prophylactic. I was 52 at the time.
Petesmom
__________________
Petesmom
"Treat each day as a new life"
Diagnosis
1998 IDC, 8mm tumor; node neg Her2-; ER/PR + lumpectomy right breast; rads; Fareston for 5 yrs;
2005 recurrence right breast; DCIS with IDC 7mm (total involvement), Her2+++. ER/PR+; simple mast; prophylactic ooph; Arimidex only
NED
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02-19-2009, 06:48 PM
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#5
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Senior Member
Join Date: Oct 2007
Posts: 203
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My insurance also paid. I did it at the same time as my bilateral mastectomy -- in for a penny, in for a pound!
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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