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10-26-2008, 07:36 PM
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#1
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Member
Join Date: Jan 2007
Posts: 17
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Do either of you think the intensity of these pains will diminish with time?
I am just getting the hot flashes to subside a bit with neurontin. The effexor that helped me with the 18 months of tamoxifan, did nothing for the aromasin.
I have my first bone density scan on Tuesday as well.
I have been taking 1600 to 2400 mg of ibuprofin daily for this pain.
I find exercise helps to a point, but when I stop, or even sit for a while, it is all I can do to get moving. I have never had to deal with pain like this before. This is so different from the "good" pain one might feel from exercise and stretching.
Thanks for your help! I can't wait to get to this checkup.
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10-26-2008, 08:49 PM
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#2
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Senior Member
Join Date: Oct 2007
Posts: 203
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Hi, I'd recommend trying a different aromatase inhibitor -- although some people told me they're all the same, my reaction to femara was vastly better than to arimidex. Can't hurt (ha-no joke) to try...
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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10-26-2008, 11:50 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Oh Cannon love your humor and your beautiful dog!
I had switched from Arimidex which was causing joint pain in toes and fingers...now on Femara and the improvemnt was great...still have some joint pain but it is mild when compared to Arimidex...I would consider making a switch as your body may not respond as harsh to another.
Best of luck,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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10-27-2008, 07:21 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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aromasin
HI,
I was also on Tamoxifen for about 1.5 yrs, but the aches and pains were not as bad as with Aromasin. I wish I could say the pains would get better, but just recently mine seem to have gotten worse. I had hot flashes with Tamoxifen and some with Aromasin, but that is not too much of a problem now. I did have a significant decrease in my bone density after 1 yr of Aromasin. Fortunately, my bones were very good to start with, but my oncologist still prescribed a bisphosphonate. I am now taking Boniva once/month.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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10-27-2008, 09:15 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I have been on Aromasin for3 years now and I have pain in my finger joints, back and foot (off and on). I exercise a lot and that seems to really help. When the pain gets intolerable, I take an Advil.
Hope you feel better soon.
Karen
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