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I didn't know that I had HER2 cancer when I was first diagnosed in 1998. Nevertheless, Herceptin was in the news, and during my treatment I asked about it. A few years later I found out that I was HER2 positive and would be eligible for Herceptin if I recurred. I was never told that HER2 cancer was aggressive. I was told that ER and PR negative was not adventagious. It is amazing now to me that it took me six years to recur as an ER, PR negative patient. Herceptin did work for me initially and has kept the cancer mets in remission that I presented with. Unfortunately, they later appeared in the bones and I needed Navalbine and now the Heceptin MCC-DM trial to keep them at bay.
Sometimes I am sad that I couldn't have Herceptin initially because I feel that maybe it would have kept me in remission. I am happy that it is available to new patients.
Best regards,
Barbara H.
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