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Old 09-28-2008, 03:50 PM   #1
BonnieR
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Join Date: Jun 2007
Posts: 2,210
My oncologist recommended 30 gms of glutamine a day. It is a powdered amino acid dietary supplement that can be purchsed at health food stores. You mix it in beverages. Ask your doc about it.
I was also on Neurontin for other issues (have recently come off)
My neuropathy symptoms would be worse towards the end of a day or when particularly tired. Still have some. But it is less all the time.
Keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-28-2008, 09:39 PM   #2
Catherine
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Location: Oregon
Posts: 715
I only had 8 chemo treatments. The last 4 were Taxol and I did not find it a very kind drug. I had neropathy. I wore little white cotton gloves to deal with my hands and the problems there. I had diffiucltly walking. When the pain was more than I could handle, they gave me decadron. I would talk to your doctor alot. Not sure why you have to be on taxol for so long, but make sure you know the reasons why. If it is killing the cancer, that is good. I have no left over problems from my neropathy, but I think others on this site have had lingering problems. I would be cautious of Nerotin also....sorry for the negative reply. I am no expert....just keep asking questions.

Hugs, CAtherine
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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