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09-17-2008, 04:21 PM
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#81
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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two years here. I miss every sister we have lost as a friend.
i am so glad there are so many familiar faces on this thread with such smiles.
my love to all of you
maria
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09-17-2008, 05:54 PM
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#82
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Senior Member
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
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What a great idea to start this thread. I am officially 5 years on August 27, 2008 NED. Each day is a gift and one of the greatest gifts I have been fortunate enough to experience are the folks on this website that provide endless amounts of support, information, and prayers. I feel a truly remarkable connection to all those that post here.
Thanks for all that you all do!!!
__________________
Joannie
Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
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09-17-2008, 06:41 PM
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#83
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Senior Member
Join Date: Jan 2008
Location: Carmel, Indiana
Posts: 98
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I am approaching my one year anniversary of diagnosis - wow, so much has happened this year and I am so grateful and so proud of myself for all I have endured! My daughter's 10th birthday is today and I am so grateful to be here to celebrate it! My last Herceptin treatment is next week. Won't miss the chemo place one bit but will miss the security blanket of having an ongoing treatment.
I am hopeful and always am happy to see others NED.
Love,
Beth
__________________
DX 9-19-07 at age 40
DCIS, Inv. Duct. Car. 3 cm
Positive lymph node biopsy
Er+Pr+Her+++
Carboplatin/Taxotere/Herceptin
10-1-07 -- 1-16-08
Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
BRCA1 and 2 negative
30 rads finished 4-23-08
oophorectomy 5-6-08
Femara started 5/25/08
Zometa for osteoporosis every 6 mo. started 9-24-08
Married 16 years!
3 kids - daughter (10), twin sons (7)
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09-18-2008, 12:17 PM
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#84
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Senior Member
Join Date: Jul 2006
Posts: 59
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Marily, may I share this poem on other sites?
Thank you!Marcia
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09-18-2008, 06:49 PM
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#85
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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I am hoping this quick note of yet another 6 months of NED provides some hope and inspiration. I certainly read (and reread) these notes and am always filled with hope for the future.
I JUST received the all clear from the results of my first PET scan after 6 months out of Chemo. So far so good.....
I too am thrilled to have the opportunity to participate in life. I am headed out to buy that ski pass (I live in Colorado) for the upcoming season!!!
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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09-19-2008, 12:35 PM
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#86
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Hi all,
Had my annual mammo today, followed by a check-up by my BC surgeon: All is well. I'm still dancing with NED and I'm growing more and more attached to him. It will be 5 years next January.
Love
Lien
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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09-19-2008, 12:40 PM
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#87
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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While I cannot brag about me, I have a friend who be 4 years out next month NED - she was stage 4 at diagnosis including her liver and several mets and she is doing well.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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09-19-2008, 01:10 PM
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#88
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Dear Barb,
But you can brag about you! You are still here, 5 years after your initial diagnosis. You are hugging a gorgeous puppy in your picture and you are connecting with us over the internet! You are part of our lives and our thoughts. You give hope to others who were just diagnosed. You are fighting the beast. You are one of us.
Hugs
Lien
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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09-19-2008, 11:41 PM
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#89
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Senior Member
Join Date: Apr 2006
Posts: 148
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Delighted to read your news, Lien.
Mcgle (UK)
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09-24-2008, 08:37 AM
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#90
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Member
Join Date: Sep 2008
Location: UK, Kent
Posts: 12
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Please keep posting your NED dances
Hi,
I was dx July this year and pretty scared right now. Having only just been informed of my HER2 +++ status, spent the last few days feeling like have been handed a death sentence, crying, awake all night.
Having read these inspiring posts I fell fully asleep for the the first time since chemo last Thursday, at least believing I have some chance, and that those who have recurrence/mets keep on fighting.
Thanks to all of you for posting your stories. I know it is easy to post when things are down, for support - but the good news is so valuable for us just beginning to get to grips with all of this.
Jin
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09-24-2008, 09:13 AM
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#91
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hello Jin.....
...and that is why her2support.org is such a valuable "tool" for each of us. Yes, it is a place to post when we are scared, have questions, lift a fellow sister or brother up but it is also a place to come when we need hope because there is plenty of that here as well.
Sending you my prayers for continued peaceful nights sleep "sister!"
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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09-24-2008, 11:19 AM
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#92
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Sleep Well
Dear Jin,
Yes, thanks to Donna for starting this very comforting thread. Do not post often but yes, this is the place where I find strength and knowledge and support. This line up of folks doing the battle and sharing their all and loving all of the fighters......WOW !! May not post but have to come her frequently for info and feel the LOVE and SUPPORT of these sisters and brothers.
Together......we are a powerful force !!
Hugs, Bonnie
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