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Old 09-20-2008, 07:11 PM   #1
Joan M
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Dana,

Thanks for letting us know about your experience, and I'm sorry that you had to be subject to the situation. And we all take offense sometime.

The "positive attitude" people can be really annoying. Not that it isn't good to be positive (may as well be happy when possible), but some how they get that mixed up with being positive as a cancer preventative or cancer cure.

Lance Armstrong said it best in his book, It's Not About the Bike, when he noted that he'd seen very positive people succumb to cancer and negative people beat it.

My maternal grandmother, who was a miserable person, lived to be 96 and in pretty good health up to the last year of her life.

I feel better and can handle things better if I remain positive, but that's not to be confused with a guarantee of perfect health.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 09-20-2008, 08:46 PM   #2
Barbara2
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Well said, Joan! I think most people are well intentioned when they say things such as "stay positive" or "your positive attitude will help you beat this," etc. etc. They want to be encouraging and feel they have to say something, but they have no idea how such comments are received by someone with cancer. It puts more pressure on us to appear happy or actually be happy, which, in their opinion, will help us to stay well!

The fact is, that many "fighters" and "positive thinkers" have not been able to beat cancer. My dad is one of them. I know of no one who loved life more than he and people loved him in return. He lost his fight but it most definately was not due to his attitude.

Life is easier if you have more ups than downs, but it is not being happy or being sad that will make the difference of beating cancer or not.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.

Last edited by Barbara2; 09-20-2008 at 08:51 PM..
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