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Old 09-11-2008, 07:10 AM   #1
PinkGirl
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Hi Terri
I had 4 FAC and I remember that it wasn't too much fun.
I had lots of nausea but did not vomit. I was very tired
and my white cell count was very low. My onc. asked me
to stay home, avoid crowds and I was often put on anti-
biotics as a precaution.

The constipation was severe. My chemo nurse told me that
it was caused by the kytril I was taking for nausea. Once I
had the "routine" figured out, I was okay. I took 2 Senekot S
in the morning and 2 more before bed.... and drank lots of water.
I started this the day of the treatment and continued for 4 days.
Keep on top of this because it can be pretty nasty.

I would have the treatment, have two good days, and then the
nausea and fatigue would start. I remember feeling quite good
the week before the next treatment. And my hair fell out three
weeks after the first treatment.

You will get through this.... you will find a way. Take good care
of yourself and get lots of rest.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 09-11-2008, 07:16 AM   #2
Terri B
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Yeah, Pinky, i'm all over the stool softeners. I learned that from the first round.

I guess what surprised me the most, was that most people say that the day of treatment arent' bad. Well, i was violently ill the evening of my treatment! the second day wasn't too bad, then the third day was a BIOTCH.

Thanks for being here.
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 09-11-2008, 07:32 AM   #3
PinkGirl
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I guess we're all different Terri. Most of my chemo-mates were
fine the day of the treatment - it would take a few days to start
feeling crappy. I had my FAC on Tuesdays and then returned on
Thursday for more F. I know I was still feeling okay on Thursday,
other than having my bright red face. By the weekend, I was in bed.

All that matters is that you figure out your schedule. It does make
it a bit easier when you know what you expect.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 09-11-2008, 07:40 AM   #4
Vi Schorpp
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Terri

We are all different. While PinkGirl took Kytril, I found it made the nausea worse, and I stopped taking it. I was fine without them for some reason. I took my treatment on Friday, and had the week-end to recover. By Sunday I was feeling better. For me, yeast rolls were the only things that didn't make me sick, and I had 2 a day for about the first week. I did find, though, that the chemo was cumulative and by the time I finished my last treatment it took me until Monday to feel good, not Sunday.

Pink is right, water is essential! It will get better, so hang in there.
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3.5 cm, 0/19 positive nodes
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Old 09-11-2008, 11:46 AM   #5
StephN
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Thumbs up

Terri -
Since you need to stay hydrated, herbal teas are a good way to get some help as well as hydration.

There are herbal tea formulations that can do a lot to help the constipation.

I used SMOOTH MOVE and other teas with SENNA.
A couple cups a day and maybe one stool softener, and I was good. I had my worst "plugged" problem when I took Decadron for my brain mets.

Otherwise, you are being very brave and a good example for your dear sister. She may take different drugs and not feel as bad, but that "hit with a stick" feeling is pretty normal with most of the hard chemos.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-11-2008, 12:17 PM   #6
Christine MH-UK
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Nausea

I was on dexamethasone, which worked for me but I know some people needed stronger anti-nausea meds. In the worst cases, they put in a device that pumped anti-nausea medicine out. Sour lemon candies helped, too.

I found that the only thing that worked for FEC constipation was something called movicol, also known as Macrogol, but the only place I have ever seen it was a hospital. They used to give it to the elderly cancer patients.
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