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Old 09-03-2008, 04:53 PM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Oh! HA HA I forgot my own BIG one!

4 years ago last weekend was when completely out of left field, I went from Stage 0 to Stage IV!!!

I remember it as if it was yesterday - looking at the Lotto sign and thinking, Who gives a sh*t about the Lotto.

Then telling my husband that he was going to "have to let me go" when the time comes. Sitting at the last Boardwalk concert of the year and wondering if it was the last one, ever, for me. Deciding to go for the odds of making it 36 months instead of only 18 and thinking at the time that that seemed SO long and SO impossible. (Of course John never thought that sounded like very long)

Running away to the mountains where we hugged and cried and talked about our memories since there was going to be no future...and went to our favorite place in the Sierra where trees grow out of solid rock in the middle of the river.

Well, I no longer think 36 months is long at all . Maybe 36 years? This summer I climbed a mountain and saw more trees growing out of solid rock and reaching for the heavens...

I'm very grateful to still be here, and for all the love that has rained down on me the past 4 years, and for all I have learned, and the people I met only because of this canser.

but of course, i still hope for a cure!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-05-2008, 08:23 AM   #2
Vi Schorpp
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Join Date: Sep 2005
Location: OH
Posts: 385
Wow Chrisy

that was a very moving post. Trees growing out of solid rock is quite a metaphor for the progress you've made in what was thought to be an impossible situation. And winning the lotto you have!

You add so much to the board, and happy cancerversary!
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Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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