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Old 09-02-2008, 07:14 PM   #1
flynny
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Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
Becky,

I haven't posted much on this website (as you can see), but your response to jentx intrigued me!! I was unaware that more Her+ individuals are low ER/PR+ or neg. I was ER(5%)+ and PR(2%)+ which really makes me wonder about tamoxifen. I will be finished with my taxol/herceptin on 9/8. Then on 9/29 I will my 3rd MUGA scan, meet with my onc. and then get herceptin. During this appt, we will also be discussing tamoxifen and I will most likely start immediately. I am 35 y.o. and have 2 young children, but obviously do not plan on having anymore, so I'm very much on the fence about having an ooph. There is so much to think about, but I am really blown away with what you said. As a side note, my mother just passed away of metatstatic BC to the brain (leptomeningeal to be exact). This type is very rare and typically people only live 4-6 mos my mother was 10. She fought a good fight, but in the end cancer got her. It was really crazy when I was dx in February, just before we were bringing her back up to NH (she had been in the Boston area for almost 4 mos). I really wish I found this website during the time my mother was dx, it would have given me so many other avenues to look at. Her cancer was ER/PR+, but I'm not sure what %age and of course HER2+ also. I recently told another onc at the Dana-Farber about my mother being Her2+ as well as myself and he was very taken back. First of all, the likelyhood of mother/daughter being dx is a low %age, but to be Her2+ is very low. My mother was dx at 54 and I was 34. Life sure is crazy, but you just have to keep your chin up and smile even when it's hard to.
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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