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Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

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Old 08-31-2008, 08:54 PM   #1
hutchibk
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Living in LA during the Northridge quake taught me alot about staying prepared and having a survival pack. Then, on 9/11, I decided to keep it well stocked all the time. I do need to add 5 days of water to it, and check the batteries, but other than that, it's in pretty good shape.

Another thing to consider is a survival pack for your pets. Have carriers, bowls, leashes, collars, litter boxes, food, and meds ready to go. Remember to add your pet's water needs in with yours when buying water... you will need to share water with them.

Also, not only canned food for yourself, but a CAN OPENER!!! And a deck of cards doesn't hurt.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-01-2008, 03:44 AM   #2
Kathy S in Tokyo
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Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
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Disaster Readiness

Great timing with your post Bill. Today the kids all had the annual disaster talks at school and came home asking about our survival pack. The neighborhood committee does drills a few times a year so we know where we can go for shelter and food if a big earthquake hits (and how to prepare the food in big pots for the entire neighborhood).

I live in an apartment building with many senior citizens and we've made sure that there is someone on each floor who knows which residents may need assistance in escaping. We handed out whistles to every resident so they can use them in emergencies but I have a feeling that most of them have stowed them away somewhere and won't be able to access them easily if they remember them.

I had to re-pack our survival kit and give all the old disposable diapers in it away as my kids have been out of diapers for quite some time. I also let the kids eat the rations for snacks every so often and restock to keep things fresh. Municipalities here are pretty quick at getting meals to serve to disaster survivors who all seem to have their own survival kit dishes but with no water for washing up, survivors have commented that a bit of Saran wrap over the bottom of the plate or bowl before getting a portion of whatever rice or veggie soup on offer (typical Japanese volume menues) saves the food from sticking and can be disposed of afterward.

These are things I hope we never need but know we will be glad to have should the need arise.
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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Old 09-01-2008, 09:30 AM   #3
notamrnpsn
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Survival pack

There is always good old MRE's. I think you can get them almost anywhere now. Jeanette
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