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08-01-2008, 05:23 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Goops, Brenda, I am with you, too!
And PinkGirl - has it occurred to you that there are bc survivors passing you on the sidewalk every day and you just don't know it. Because they have just gone on to live out their (long) lives. Do you walk down the street shouting out "I'm a cancer survivor"! Probably not (at least not ALL the time), so what makes you think there are not others out there too?
I went to a Jimmy Buffett concert once and saw a fellow "peer navigator" there. She was a long time BC survivor - but to me and everyone else, she looked just like any other parrothead. As, by the way, did I. That was shortly before I DID have a recurrence, but since then I have gone to 4 or 5 more Jimmy Buffett concerts and don't plan to stop any time soon.
just another parrothead. They do have those in Canada, don't they?
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-01-2008, 07:07 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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I was in Vegas for a week...
and I missed alot of threads. I think that with Herceptin, certainly most early stagers will not recur. I know my onc. gave me a "well over 90% cure rate", and he would not use those words lightly. It's a whole brave new Herceptin world out there, Taxol/Taxotere world out there - and those stats won't be available for years to come - and I intend to be in the over 20+ years survivor group.
I have a friend who was diagnosed at stage 3, 12 positive nodes - 10 years ago at age 43 - no recurrence. I have another friend diagnosed at age 37 - stage 3 - ( now 11 years out) - no recurrence.
And it's a crapshoot - let's just keep on plugging for the cure.
Oh, and Chrisy - yes, we do have parrotheads in Canada.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-01-2008, 07:14 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Chrisy, Chrisy, Chrisy,
And PinkGirl - has it occurred to you that there are bc survivors passing you on the sidewalk every day and you just don't know it.
So now you are assuming that we have sidewalks in Canada???? I had to google parrotheads. I've always liked Jimmy Buffet but had never heard of a parrothead. Now I know.
Just between you and me, I'll tell you what my problem is with the discussion in this thread. I admit that I have always thought that breast cancer isn't a good thing to get because lots of women die from it. Don't know where I got that idea but that's what I've always thought. Now, the optomists in our group are trying to set me straight. So now I'm wondering why we are always crossing our fingers, sending good vibes and praying for each other.
Why are we all basket cases when we're having scans? I took out my garage door while waiting for MRI results. If all of us here have had surgery, chemo, radiation, on tamox. or an AI, then we probably won't recur, right? But we keep on being scared and we post about mind/body stuff and how to meditate and relax and handle our stress from this disease. Has that all been for nothing??? According to what I've read on this thread, the majority of us are not going to recur; we're going to live to be little old ladies and die from something else. I am confused.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
Last edited by PinkGirl; 08-01-2008 at 07:17 PM..
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08-01-2008, 07:33 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Pink....Nothing to add just wanted to say I loved your post. How true it was. No matter how optimistic any of us are the fear of this disease is always lurking....how right you are!
As I read your post I smiled all the way to the end.
I guess we'll all continue to "send good vibes" ~ "cross our toes" and "pray" or whatever trips our triggers.
MJ
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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