 |
07-22-2008, 01:13 PM
|
#1
|
|
Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
|
well, thank you for all your best wishes , I did went to disney and I did Ok , because I have like 3 o 4 times some painfull moments on my belly close to the liver under my two breast, but most of the times was in my whole stomach like gas incapsulate after I induce vomit I did past some gas I was felling better I stop the femara because 2 motrin didnt help ...so today I did call my doc and the nurse (who is not that nice, like my Doc) told me that after the other Doc "on call "review my pet scan he said that I need to take a strong medicene for pain ..and I call 8am and I got my call back 4pm ...for pain medication??????I told him that at this hour 4pm not to worried about it so I can wait until I see my doc tomorrow ..because was 4 pm the day was over already ...so I'm so panic with incoming news tomorrow ...my husband is coming with me ...I guess I have to forgot about the sir spheres ? and LIFT trial also (because take so long and I can't wait ) ?? and see and find another drugs ...the nurse only told me that the liver tumors increase in sizes ....that is it ...I ask about the thing that I felling in my stomach and he said you need to speak that with the doc ??? ..I'm so so so so so hopeless ..I try to check new thing outhere but anything give me some relieve ...so mad , impotent , unhappy ....sorry to complaint a lot but just dont felt strong and you all know this type of moments and you all are my windows where I can let my main problem out and get some refreshment ,I can't not complaint with my family because IF I'm tired to complain to be tired how about them ??? ...is not fair to ruin there vacation, life etc ......
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
|
|
|
|
07-22-2008, 01:48 PM
|
#2
|
|
Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
|
Lily,
My heart aches for you. Keep us posted.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
|
|
|
|
|
07-22-2008, 02:38 PM
|
#3
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Don't despair Lily - We are here for you. You'll see your doc tomorrow and hopefully a new plan will unfold.
Please know that I am praying for you.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
07-22-2008, 03:13 PM
|
#4
|
|
Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
|
Hi Lily
I am so sorry that you're having these issues to deal with.
Please remember Jean's "Sister's" poem
the women in your life
will be on the valley's rim, cheering you on,
praying for you, pulling for you, intervening on
your behalf, and waiting with open arms at the
valley's end.
Sometimes, they will even break the rules and walk
beside you...or come in and you carry you out.
And you've also got your special brothers - Lee, Bill, Doug, Eric and RB. As Caya said, we are all here for you.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
|
|
|
|
|
07-22-2008, 03:32 PM
|
#5
|
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
Lily I am praying that when you see the doc tomorrow that things work out for you. In the meantime I know we all want to live as normal a life as possible and make things normal for our families, such as vacations etc., but we all have to remember that we are the ones fighting and when we have trouble we have to be a little selfish and take care of ourselves. Keep up the fight girl!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
|
|
07-22-2008, 04:48 PM
|
#6
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Dear Lily
I just wanted to let you know that I am rooting for you, not from the sidelines but beside you.
Keep thinking only the best thoughts and know that there are so many options left out there to get you into the remission you deserve.
Love,
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
| Thread Tools |
|
|
| Display Modes |
 Hybrid Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 07:44 PM.
|
