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Old 07-21-2008, 06:42 PM   #1
Sheila
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Location: Morris, IL
Posts: 3,507
Lisa
Maybe its time for a PET of CT scan....just to rule everything out...it could even be your gall bladder....I agree with Brenda, time to call the shots for yourself, and if your current OBGYN is not cooperating, find another....after all you've been through, they should not ignore you...where's the compassion?????
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 07-21-2008, 07:48 PM   #2
Becky
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Location: Stockton, NJ
Posts: 4,179
I just changed gynes (I have changed every doctor I have had except for the rads onc who really doesn't have anything to do anyway). I felt rushed all the time - and for a "once a year" patient with a history of cancer of whom they removed my ovaries, they could give me a second. Once I almost ran out of the room after him to say, " I didn't ask you any of my questions yet". I paid $76 for a copy of my entire chart and went elsewhere and I am thrilled with the new guy. The old practice asked if I was moving. I said, "I'm not moving houses but I'm moving to a new practice".

If you can't get a response, leave. There are lots of good practices too (I also loved the staff at the new place too). I don't tolerate anything anymore. The copay is the same no matter what and I want someone who will be my partner in helping me keep myself well.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-21-2008, 07:52 PM   #3
Mary Jo
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Amen Becky and well said. I've found that if they aren't working WITH ME then they are working against me. Against us should never be tolerated.

MJ
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 07-21-2008, 08:00 PM   #4
Jackie07
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Location: "Love never fails."
Posts: 5,809
Nausea can be a symptom for many, many different things. I am glad your MRI was fine. Do you have a primary physician or family doctor? He/she is probably the one you really need to talk to first. The oncologist should be most knowledgeable about our condition. But they are really, really busy and are usually under tremendous stress.

My primary (The same one for my In-laws, my husband, and me) had his training from the Mayo Clinic and is well repected by his colleagues. I didn't hurt that his Dad used to be the President of the Board of the hospital. We got real lucky to become his patient just after he started practising in our hospital. (My Father-in-law got the wind from the nurses [yes, nurses are very, very important people] and had all of us switched to this primary.) So far he has taken care of the management of a diabetes, a brain tumor surgery, a heart attack, 2 hip surgeries, an angioplasty (3 stents), two breast cancer surgeries, a ganglion cyst, an Alzheimer diagnosis for just the four of us in a 10-year span... Because of his background and the policy of the hospital, he was never hesitated in making necessary referrals.

My point is: Pull all the strings you can to get this nausea thing checked out. It could well be indigestion or nothing[menopause?], or something serious [my Mother-in-law had 'indigestion' whole day before finding out she was having a heart attack].

Hope you feel better soon.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-21-2008 at 09:04 PM..
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