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Old 06-26-2008, 07:13 PM   #1
Bill
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No, Sherry, you are not over-reacting at all! It's your health at stake. I think you have a right to speak with the radiologist regarding your results and his interpretations of those results, but that's not the way it's "normally" done, so that's probably why your onc. got shook up. I'm glad everything came back fine! I wish I could help you more. Thoughts and prayers, Love, Bill
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Old 06-26-2008, 10:32 PM   #2
Jean
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Sherry,
How awful for you.
I have an MRI/every other 6 months alternating with
Mammo, recently I have replaced the MRI with the new
Dilon test. My point is when I have the MRI the dr.
radiologist reports back to me and tells me the results.
When I have my digital mammograms the dr. at the
radiologist center gives me the results then and there.
Your onc. is way out of line. I am sure he was angry because he may have felt they upset you with the way they handled the reporting. But still, they were reacting correctly since they viewed it as something to check further. Maybe you can remind your onc. that you come first and your comfort zone is to have your reports ASAP. I have to wait a few hours after MRI to get results. Isn't the very point of having the different dr.
view the reports to make sure that nothing is overlooked?

I am glad that it all turned out well for you.
Best Regards,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 06-26-2008, 11:32 PM   #3
StephN
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Hi -
From what I understand the MRI does NOT take the place of a mammogram. Don't know where your onc gets THAT idea. My onc says I need BOTH. There are things that the digital mammo can see that the scan does not.

There are new scans that do not squeeze the breast tissue as much and you just stay in that position for a flick of the switch and you are freed up. Maybe you could take some sort of mild pain med for the mammo.

Anyway, Pet/Ct will not see everything that can go on in a breasts either, so that is NOT a good substitute for a mammo.

To address your onc's asserting himself to the other radiologist. I think he was overreacting, and maybe there is something behind the scene between these two institutions that is not clear. I think you need to tell him that you really don't doubt his opinion, but it had been so long since you had a good breast study, that you felt it was the right thing to do at that point.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-27-2008, 09:01 AM   #4
Jean
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Very True Steph

Steph,
True - True, regarding MRI/and/Mammo...
That is why I alternate every 6 months...
The painless test is the Dilon and it is just great - where once again you see the entire breast and can have results before you are dressed. MY thoughts on this type of program checking is that hopefully if anything is happening it can be caught early.

Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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