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I chose not to take herceptin
because back in early 2002 it was a trial and when I read and researched herceptin I was concerned about the number of people who took herceptin and then had brain mets as their first recurrence site. Also, the heart factor wasn't clearly understood back then, plus I didn't want to continue treatment for a full year after completing my standard chemo - it just seemed like enough is enough!
I'm fine with my decision as I'm now over 6 years out and doing fine. I did the UW vaccine trial in 2004 (which I wouldn't have qualified for if I'd had herceptin) plus I recently completed the tykerb/placebo trial (which I also wouldn't have qualified for if I'd had herceptin) - so it's an individual decision, oh and I'm also er/pr-ve.
Hope this helps
Marianne
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