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Old 03-14-2008, 12:59 PM   #1
theresaw
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Location: Maple Grove, MN
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Question

Hi StepN-
Yes I believe tumor marker where a part of it, however she just check white blood cell count, red blood cells. She checked something else I can't think of it..I know it starts with lh something. Sorry if I am being so vague about this, it just sometimes when you see your doctor and they tell you things you hear them but you don't hear them at the same time....she did not do a ca27-29.
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Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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Old 03-14-2008, 01:14 PM   #2
StephN
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Can you get a copy of your lab results so you CAN keep track of markers and blood counts?

My nurse or doctor always gives me my copies.

The PET scan would show heightened activity (light up) in the node or other areas that would likely indicate fast growing cells such as cancer.

Try to have the PET a lot sooner than 6 weeks if you don't have any other blood work or test such as ultrasound.

There should be specific tests that would show the difference between a breast cancer met and lymphoma, which is an entirely different disease.

Good luck, Theresa
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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