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Old 01-25-2008, 09:21 PM   #1
Becky
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Location: Stockton, NJ
Posts: 4,179
Dearest Tonya

When they did the biopsy on the skin mets, did they redo the ER and PR (sometimes it can change and then you could benefit from Tamoxifen or some other anti-hormonal). Get with you onc and try some other chemo that works in another way that the taxanes. They aren't showing benefit (at least not now). There are plenty of things to try (Navelbine, Gemzar etc). There is the right thing out there for you.

Don't think about it now and have a nice weekend with that wonderful family.

Love to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 01-26-2008, 09:07 AM   #2
tousled1
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Location: Acworth, GA
Posts: 2,104
Tonya,

Didn't you just start with the Taxatore? I can't remember if you're getting it every week or every three weeks. Sometimes the chemo takes a few cycles until you can actually notice a change. I did Taxatore to shrink my initial tumor which it did but it took a few cycles until we could actually notice a difference. Hang in there and try and relax. Give it some time and I'm sure when you see your oncologist on Thursday he'll have an idea of whether or not it's working.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-26-2008, 10:10 AM   #3
Mary Jo
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Location: Sheboygan, WI
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Dear Tonya,

I cannot offer any treatment advice but did want to offer you my love and support. I'm so sorry you are having to go through this and can only imagine how stressful and anxious of a time it must be for you. It sucks.........to put it mildly.

Now, that being said..........from reading the other posts........I am encouraged for you and hope you are as well. There is a treatment that will kick this crap to the curb and maybe what you are on will do it but like some have said, it may take a bit more time to notice it. Otherwise it sounds as if there is plenty of arsenol out their.

I know "letting it go" is almost impossible and I'm sorriest about that. If I could take those feelings to myself, I would Tonya, but sadly, it doesn't work that way.

Praying for peace dear friend.................................

Hugs,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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