Hi everybody! Thanks for the feedback. Bonnie had a good idea, too. I was just remembering when we first had to deal with the cancer, it would have been helpful to have, maybe a page or two of "commonsense" things to do. Nikki was big on the notebook, with all questions, phone #'s, etc. If newbies had something they could focus on, just general good practices to adopt, like caregiver should eat well and take care of him/herself as well, try to get enough rest, don't be afraid to seek a second or third opinion, you know all of the things that you wish you could go back in time and tell yourself. Nothing that could be outdated tomorrow or have to be updated constantly, just something to give people newly diagnosed a sense of control over the situation, which, I think, would be a great comfort, a "we are in charge here type of attitude". I think as word of this site spreads more, more people will be coming here early on. Everyone of you "has been there and done that". I don't know, maybe we should spend a little time discussing the idea, and as a group in a thread, "vote" on the advice to give to newbies. I just remember all the new people that would come into the infusion room with that "deer in the headlights look", and I think if we can come up with a "to do" list, it would empower them and hopefully take away some of the fear. Thanks, Bill
|
Threaded Mode