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Old 01-11-2008, 06:31 PM   #17
Lolly
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Join Date: Aug 2001
Location: Oregon
Posts: 1,756
Congratulations Laurie! It's fun having the port for "show and tell", but be sure and keep it in a ziplock baggie so people aren't acutally able to touch it, mine still had fluid in the resevoir when I took it home. They had put it in a special ziplock bag with orange and black marks and "Biohazard" written on it, which I was glad for. It was fun for awhile, but I eventually gave it back to my main oncology nurse, and she was happy to get it as she planned on using it for a demonstration for a class she was teaching.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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