advice on lung mets please

[Sueinuk]

I am in the UK too and am infuriated by the treatment you've received at the hands of that reg. At my hospital I am treated by my onc and his registrars but none of the latter would even think of changing my treatment or giving out advice unless they had spoken with the man himself.

I don't have secondaries (as far as I know) but am being treated for a local recurrence and am on Herceptin and Capcitebine. I would be heartbroken if my onc's registrar spoke to me like yours has you. As other posters have said, report her. She needs to take lessons in bedside manners. I am so angry.

love
Sue

[fullofbeans]

My GP left 3 messages and the hospital/clinic did not return her call..

the secondarie nurse specialist will return from her holiday on Monday so I will speak to/see her. However the thing is that it is official policy to not scan until you have symptoms and it is official belief that it does not matter whether you catch mets early or not, so it is not just her, it is the reactive system. Actually the oncologist is actually reasonable if you ask for a scan during appointment (because of symptoms) with registar (who shoots off ask him then comes backs usually with yes), but cannot get appointment for weeks now. However they would not agree to a monitoring program. It is exhausting to always have to ask, exhausting to feel that you have to beg, exhausting knowing that they would nedically treat their relatives differently and that you are just a number.

Sue did you receive a taxane the first time you were dx? ( I am assuming that you are not in a private hospital and that you are located in England) Because the use of taxane are not allowed here for early BC. Have you been scanned?

Again thank you for all your support