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Old 01-06-2008, 12:20 AM   #1
Patricia
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Location: San Francisco, CA
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Happy Cancerversary Chelee!!! May you have many many more!

We get it - big time! I felt as if my life restarted after cancer. I personally think about it as life 'bc' and 'ac'.

Don't let those 'friends' get you down, they are ignorant and if they had cancer you can bet that it would be a big thing for them. I have yet to meet a cancer survivor for whom it was not a big deal.

Hugs,
Patricia
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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Old 01-06-2008, 10:26 AM   #2
IRENE FROM TAMPA
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Smile Happy Cancerversary Chelee from one who understands

I know where you are coming from Chelee- that is why I rely on this board so entirely.

Although my family and my friends are "there" for me, I still feel sometimes people are tired of hearing me complain (which I really do not do often) but still there are times. I have to say that I have been "around" for a good 12 years now- (will be celebrating my 12th year now in a few weeks) which is a very wonderful thing don't get me wrong. But after so many years I think people just get used to it if I can say it that way without sounding sour. To me it's a constant thought in every thing that I do but really what can anyone say.They are supportive but I guess there are times when I have a pity party for myself and think someone should come up to me a say WOW lets have a great big "survivor" party for you. YOU DESERVE IT. I also get those comments once in awhile about well we are all going to die at some point. DUH - but our fate is staring us right in the eye daily.

I dont usually rant on like this Chelee but your post got me to thinking about how I feel sometimes and thought I would use this opportunity to vent a bit of my honest feelings too.

Basically I feel that everyone means well, they just don't know what to say. We are all loved and everyone is thinking about us but there is nothing they can do to save us and I know this must bother them - just be there for us when we need them. They are very scared also. I find myself being the comforter many times instead of the comforted.

So just remember Chelee - we all love you and CARE and so do those around you. I think it's might just be more difficult for them to show.

You take care and enjoy your CANCERVERSARY.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 01-06-2008, 01:43 PM   #3
StephN
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Smile Enjoy your SECOND cancerversary!

Sending you the best healthy wishes for getting through Canserversary number two. May you see three, four, five and many more after that. Sometimes we suffer in silence, but we can also CELEBRATE our achievements in silence as well. Enjoy yourself for YOURSELF.

No one knows but YOU what your life with cancer has been like. For each it is different, but we will share your joy in passing the TWO YEAR mark as NED. Keep dancing with that guy!

P.S. Many people have NO idea of the importance of getting to TWO years NED for our diagnosis. Maybe you can educate your "friends."
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 01-07-2008, 07:23 AM   #4
RobinP
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The wonder and glory of this board is that there are others like you who do totally get it. This board was the only group of people would congradulated me on my five year anniversary. I announced it to my family, but they failed to acknowledge it at all. Having said that, congradulations to all on their cancer anniversary and know we here are fighters and survivors so live life to its fullest, knowing we worked to be here, unlike many in this world who just take life for granted. We truly know what it means to live and give.
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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Old 01-07-2008, 08:08 AM   #5
suzan w
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Smile

Happy Cancerversary!!! And, I "get it" like evereyone else here. I could go on and on about how it hurts my feelings when people don't..."get it". And I say that because, even before cancer, I think I am the type of person who "gets it"!! I have had friends and family who have been hit with a major life crisis and I sent cards, made phone calls, cooked casseroles and on and on, yet these same people do not respond in kind. And quite frankly, I just don't understand!!! So, the Her2 SUPPORT Group is just what it says...SUPPORT!!! It has become my support system because we all care about each other and your milestone is my milestone!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 01-07-2008, 09:47 AM   #6
WomanofSteel
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Posts: 889
Happy, Happy two years! Wishing you many more!
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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