Kat in the Delta

[mcgle]

Very simply:

Diagnosed Autumn 2005 - stage 1, grade 2

Surgery, rads and tamoxifen by choice (no chemo or herceptin)

NED on two annual follow-up mammograms

See breast surgeon once a year for a 'poke n' grope'!

No genetic testing (dx postmenopausal), so don't think this is done for us old girls!

Mcgle (UK)

[mslinda]

Very interesting repsonses. Hope more of us respond to this thread.

I will be 3 years NED on 1-5-08. A few scares during this time, but everything worked out o.k. I get whatever test I request. But have graduated to seeing my Onc. every 6 months now. With her standard blood work. I don't get tumor markers done. My Onc. doesn't do them. I will see my breast surgeon in February, and am sure he will start seeing me annually. I get a mamo and MRI alternating every 6 months. The rest is in my signature.

Happy New Year to all.

MsLinda

[suzan w]

NED so far...2 1/2 years from surgery, 1 yr 2 mo since last herceptin. On arimidex for 5 years ( started 1 yr. 2 mo ago). Haave onc visits every 3 months (now every 6 m o) for the first 2 years...no scans, unless I ask for them. Have blood work done every 3 months, including CA 27 29. No genetic tests. Have CA 125 every year

[TriciaK]

It is good to see you post, Kat---I have missed seeing you often! This is an interesting thread and I also hope to see final results .Here is my info to add:
*Spring 1985--diagnosed with in situ BC, right breast (age 56)
* bilateral mastectomy because of calcification in left breast
* silicone implants
* October, 1985--My only sibling, age 53, died after fighting BC 7 years
1985-1990: I AM CANCER FREE FOR ALMOST 5 YEARS
*Spring 1990--mets found in T9 and T10 vertebra
5 YEARS OF TAMOXIFEN,BECAME VEGETARIAN, LEARNED
PSYCHONUEROIMMUNOLOGY, SELF-HYPNOSIS.
CANCER FREE ALMOST 15 YEARS !(no treatment, no tests)
*June 30, 2004-heart attack
*July, 2004--CT scan prep for heart surgery reveals her2 cancer in lungs
*6 months navelbine and herceptin with 9 more months just herceptin
Ejection fraction dropped to 30--herceptin stopped
* May, 2006--Triple bypass heart surgery
* December, 2007-- CANCER FREE SINCE 2005
TESTS: CA15, regular blood tests, PET/CT every 6 months
No genetic tests
Hope this is helpful! Hugs, Tricia

[Ruth]

I am 4 1/2 years out from diagnosis and 3 years and 4 months from the end of my herceptin...no recurrance. I see my Onc. every 6 months with blood markers drawn, no scans other than mammo on remaining breast & breast MRI. I think he will switch me to once a year when I get to the 5 year mark. I was stage 3....

No genetic testing done.

Hugs ~ Ruth

[bashmaz]

Diagnosed stage 2 April 2002, lumpectomy, ACx4, Taxolx4, 37 rads. Chose not to do Herception trial. See onc. every 3 months, no tests, no blood work, just questions about how I'm feeling. Annual breast MRI & mammo.

2004 UW vaccine trial.

BRCA 1&2 negative.

Currently in Teach trial for Tykerb - sure I'm on placebo.

So far, so good!

Marianne

[Lolly]

-Diagnosed Sept. '99 Stage IIIB, ER/PR- HER2+++

-Recurred to lymph nodes and chest skin Jan.2001.

-Have scans when progression is suspected, otherwise annually. CT's w/contrast, PET/CT, lung X ray's, bone scans, brain MRI's.

-CEA has been run occasionally but other than at first recurrence when it was 10(quickly came down to under 3 after Herceptin/Navelbine) has remained well under 3 for years now, so is not considered reliable for me. It was run when this latest progression heated up, and was under 2.

[Gerri]

Dx'd Nov 05 Stage 2A, ER+/PR+, HER2+++ - no recurrance

Chemo Jan 06 - April 06, Herceptin until March 07, on Tamoxifen until I go into menopause then will switch to an AI.

Genetic testing negative for BRCA1 & BRCA2

Mammograms once a year, had one breast MRI will have another after 6 months. Echos every 3-6 months. Will have bone scan next week due to hip pain.

No routine tumor markers or scans, but onc will do if symptoms present.