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My onc does nodt do the test either, but the family practicioner I work for (also treats me for thyroid and BP problem) ordered the test and my insurance paid for it. The doc I work for also ordered a PET scan since my onc wouldn't, insurance paid for that too. So I will be having these test done routinely, but ordered through the doc I work for. Sometimes you have to go around the system to take care of your health. Don't get me wrong I like my onc, she just doesn't believe in testing until symptoms appear. I think if you are her2 positive, these tests must be done routinely as our cancer is more aggressive. If caught early things can be kept in check. Doc I work for believes this also.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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