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Old 12-01-2007, 05:23 AM   #1
Mary Jo
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Hi Suzanne,

I'm happy you got your first tx out of the way. That's always a great feeling to move forward and know what to expect. I remember receiving my first chemo - oh geez - the moment she "turned the drip on" I thought - "here I go" - "I'm probably going to die!!!!!!!" LOL! I didn't. I sit here now 2 years out since chemo and all is well.

I can't speak to the "jittery" feeling you are experiencing as I didn't experience that. I remember the "stoned feeling" or as I called it "foggy brain" syndrome and that came and went as chemo was administered. I think after a while you just kind of get use to the way you feel while going through chemo. I remember thinking it wasn't just that bad but my husband reminds me that it wasn't as "easy" as I often make it sound. But, like I said, after a while it just "seems" normal to feel like you feel and I'm the type that pushes myself through most things. So, it just was what it was.

Sending you prayers for successful chemo cycles. May it treat your body kindly but do the "work" it's suppose to do.

God Bless you Suzanne and thank you for sharing your first experience with chemo with us.

Love & Peace,

Mary Jo
Romans 8:28
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-01-2007, 06:57 AM   #2
nitewind
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Hi Suzanne, number one is under your belt now, I think that's the worst one to get thru. I remember that I got the jitters really bad and the nurses said it was from the steroids. I used Xanax, don't worry about taking the ativan, just be glad that it works for you. So glad that you got the port, they are the handiest little things!
Keeping you in my prayers
Hugs
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 12-01-2007, 08:16 AM   #3
mimiflower07
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thank you mary jo and susan, i feel much better today not jumping out of my skin. I think i will continue with the ativan just for those moments.
thanks for your thoughts
best wishes suzanne
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Old 12-01-2007, 09:09 AM   #4
Sheila
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Suzanne
The steroid buzz is no fun, so whatever relieves it is what you need to take...mine usually hits late night the night of chemo...before that the benedryl seems to keep it in check...but then I am wide awake...I get mine IV push...do you get it IV or pill form...it might make a difference! Glad your port experience went well..lets hope for smooth sailing from here on!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-01-2007, 09:40 AM   #5
tousled1
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Suzanne,

Glad to hear that your first chemo session went well. The first one is the hardest and I think that's because you don't know what to expect. Hang in there it gets better. And don't worry about taking the Ativan -- I take it myself.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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