 |
11-16-2007, 11:56 AM
|
#1
|
|
Senior Member
Join Date: Aug 2007
Location: Silicon Valley, CA
Posts: 76
|
Sorry, I left out the website for the medical referral to evening primrose oil:
<http://www.news-medical.net/?id=14257>
(((hugs)))
Sandy in Silicon Valley
__________________
1992 - age 44/ ER-/PR+ Stage II dx - mastectomy, CAF x 6 cycles; Tamoxifen
1997 - BRCA1 mutation dx'd
1998 - ovaries removed
1999 - off Tamoxifen, on Arimidex
2003 - dx'd Stage IV - lymph nodes & lungs. ER-/PR-/HER2neu+++.
Tx: Herceptin & Taxotere (6 cycles).
2005 - 2.9cm x 3.6cm brain tumor. Craniotomy, CyberKnife. 9 mo. staph aureus infection at incision site - 2nd craniotomy. Two small brain mets CyberKnife'd.
2006 - revisit Xeloda - dosage lowered to 2500mg/day, 5 cycles.
2007 - "spot" dx'd on qtrly brain MRI - same location as CyberKnife 7/05. > by 2-4mm per quarter - - radiation injury or re-growing cancer? Tykerb added to Herceptin - July, still "watching & waiting". Otherwise, fully functional...
"The majority of people are not only afraid of holding a wrong opinion, they are afraid of holding an opinion alone." Kierkegaard
|
|
|
11-16-2007, 12:11 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
|
Specialist who deals with the entire body
What continues to be missing for all of us after decades of study is the wisdom, knowledge, and experience of someone with training that deals with the entire body instead of limited to oncology or gynecology, etc. -- an endocrinologist who can help analyze the hormonal balance throughout the body, including the natural changes of aging on the endocrine system and any unnatural changes. Even better would be someone trained as an endocrinologist with training in genetics. Endocrinologists are trained to understand the metabolism and dietary problems as they deal with problems like diabetes and thyroid imbalance, and we are talking about edible supplements and their effects here, aren't we?
AlaskaAngel
|
|
|
11-16-2007, 05:38 PM
|
#3
|
|
Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
|
Sandy,
Your link never did show up, see if you can post it again. Here is a link to a brief article in CURE Magazine warning about the use of unregulated supplements and also certain vitamins by cancer patients. Good advice.
http://www.curetoday.com/currentissue/departments/food/index.html
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
|
|
|
11-16-2007, 06:21 PM
|
#4
|
|
Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
|
Sharing Information For The Benefit Of All
Yes, AA, I have wended my way to an endocrinologist, seeking relief my incessant hot flashes, in utter desperation. Upon finding a gem, I suddenly realized -- 11 yrs in bc -- that every one of us should have one of these! It is a whole fresh perspective of the body and its processes. I had estradiol and testosterone and a whole panel of NEW tests when I thought I'd seen it all. We can always learn something new. Every day, hopefully. If we are open.
I have just finished a book called UNLOCK YOUR HORMONES by Dr. Graeme Williams, 30 yrs in practice. It is eye-opening. My NY nutritional oncologist who I affectionately call my nut onc/guru is well-versed in supplements, his area of specialty. From him I have learned meditation and guided imagery, which Steph elucidates about in depth. The benefits of these are invaluable. Mainstream, cutting edge oncs are given no education in this area in our medical schools, much to OUR detriment I believe. It is ancient (Eastern) wisdom in modern day terms. A meeting (finally) of the East and the West -- that is proving to change, and save, lives. Praise be! Treating the whole person (holistic medicine) is so obviously necessary, rather than addressing symptoms of disease and dysfunction. Finding an expert who covers this plus oncology and nutrition, including supplements, which remain an enigma, unregulated and yet full of promise.
As many PM me asking me for MY LIST, I have tried to provide my information -- specifically recommended for me with my pathology, from my oncological nutritionist whose expertise is in INTEGRATIVE ONCOLOGY. This includees: Supplements, meditation, guided imagery and the like. He is quite a remarkable and learned man who updates my list as often as I would like. I now visit him annually, yet have access to his knowledge by phone or email throughout the year. I am blessed to have been led to such a gem, a fountain of information. I sing his praises often... I have posted the link to my 11/5 thread, GAINING CONTROL, above...
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
|
|
|
| Thread Tools |
|
|
| Display Modes |
Hybrid Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:01 PM.
|