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Old 11-14-2007, 03:52 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
This board is so vauable because it IS accessible to the newly DX that are scared out of their minds and looking for help, support, & answers. As I mentioned in a earlier post I can't imagine what would of happened to me had I not ran across the Her2 support board. There were other bc boards...but this one meant more to me because it was for her2 women. I *wasn't* getting answers at my cancer center & it was making things even more of a nightmare for me until I found this board...thank God.

So if people can access posts from this board that does not bother me. I started off being "Chelee" and have stuck to that name. (Again, not my real name.) But I do like it when people use what appears to be a real name verses as you said Andi...something like "NRTYpphy" I hope no one takes offense to that because my intentions are good. I rather they choose a name...even if its not their real name. (But you should stick to that same name and not change it.) If I wouldn't of had SO MANY problems at the cancer center I'm going to I would of used my real name. However people I correspond via my PM's or email...I do tell them my REAL name with no problem.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-14-2007, 05:02 PM   #2
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Each life has a story...

Oh Chelee, YOU just jumped off the *page* and in to my heart. I FELT you. And it felt so REAL! Love you, sweet Sister... You are having such problems at your C Center???? That is not good. That is terrible in fact. Can you elucidate??? Even in a PM. But for all of us if possible. You should love your C Center. And each one who works there should love you. I cannot even begin to imagine any other way. It is essential to my wellness. Going for Vit H tmrrw. Getting psyched, in a good way. Soooo want to take a 6 mnth holiday. Just told Paul that I don't really mean that. By Day 3 I'd be midst panic attack and would be calling and demanding H on Sunday!!!
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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