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Old 11-14-2007, 03:24 PM   #16
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Thinking It Through

Upon pondering this, I think I would want any one out there who is dx w/bc and is HER2+ and searching for answers -- to be blessed w/finding this board. I pray they would be led to US. And to me. And what I post is what I tell those who are sent to me -- friends of friends who are newly dx and a bit lost and entangled in the sudden immediacy of their lives being threatened. We all know the shock that choked us and sometimes returns to haunt and taunt us. Only one who has been there, done that can lift such a person up.

I can of feel this way -- every life has a story. I have no problem sharing my life's journey and the Lessons gleaned. I invite that. We are each here to love and help one another. By each I mean every Soul, not just each of us on this site.

I say, be who you are. Say what you feel. Those who mind don't matter. And those who matter, don't mind.

I'm getting comfortable w/being out there. Accessible. But am rethinking posting the city I live in and my birth date... I have decided not to post a different nebulous username. I stand behind everything I say. And I like being called by name. As I've stated, I also prefer to talk to others calling them by name -- for the record. If you are MSPP I just don't feel compelled to respond. Sorry. With loving energy. Living open to Universal Love...
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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